Thursday, January 31, 2013

Dopamax please start working

Right before I went on the Topamax, my head went through a bad period where it hurt, actually hurt, not just had discomfort or itchiness, pretty much every day for long periods of time. So it's been hard to know if the Topamax is going to do anything especially as it supposedly takes as much as six weeks to work and it's only been a week and two days.

Yes, I've been counting.

The first couple of days it did make me a bit sleepy and I was reminded that they don't call it "dopamax" for nothing. But that effect was gone pretty quickly.

The famed "loss of appetite" hasn't emerged at all of course and I really should have known. No medicine with loss of appetite as a possible side-effect has ever given me loss of appetite. Then again, the head hurting thing does tend put me into a carb frenzy so maybe it will still happen. I can dream anyway.

I did actually get quite sad the other day and over absolutely nothing. Some dude at work insulted my cake pops. Moron. I will cut you. But first I moped around all day like a big baby. So I need to keep more of an eye on that than I expected to have to.

Today I feel okay in the head. A little itchy at times. Maybe some discomfort for a few seconds here and there. But no outright pain, at least not yet.

If it's going to happen, it generally does around 5-7pm and it's only 4 so there's still time. But compared to the past two weeks where it was bad by noon or sometimes even earlier, getting to four with little pain is a bloody miracle of sorts. I will take it, that's for sure.

This is going to be a long six weeks.

Wednesday, January 23, 2013

Ac1 is "great"

My Ac1 test came back: 5.2

Normal is 4.8 to 5.6. So, as my doctor's PA says. "Your glycolated hemoglobin was 5.2. This is GREAT"

Told you so! :)

Tuesday, January 22, 2013

I'm a topamax baby now

Had my big appointment with the Brain Doc this morning on the way into work. It was pretty uneventful. He asked me some questions about what I could and couldn't do and how I was feeling compared to both six months ago and a year ago.

I told him I was definitely better than a year ago and not really better than six months ago.

I'm not sure this is 100% accurate because my progression has been very up and down. But it's close enough.

Monday, January 21, 2013

Fasting Glucose Results Back

My glucose levels are fine. Big surprise. Only not really.

I got 79 and the range is 70-99. I think that's pretty good, but I'll find out what my doctor thinks soon enough.

The Ac1 test result hasn't come back yet but I bet it's fine too.

Tuesday, January 15, 2013

Four year stats only four months late

Finally got my lab work and other yearly tests done. I didn't get the full complement of labs done this time because I've never had any problems with most of them and there isn't any history of problems with those things with my surgery.

I had the "bone density" ones done and the "anemia" ones and the standard ones. Everything looked pretty good with the calcium. My calcium levels are normal but serum calcium almost always is. But my Vitamin D levels were okay and my PTH was good. So all of that together means, supposedly, that I'm not leaching calcium out of my bones.

Except I also had a DEXA scan done and, while everything was in the normal range for my age, on every measure I was lower than the last time, three years ago. So that's worrisome.

Not to my doctor who just said "your DEXA scan is normal." This why you have to stay on top of your own labs, in my opinion. Doctors don't see things the way I do. I look for trends, not just that my numbers are within range.

Thursday, January 10, 2013

No riboflavin gives me a bad head

I'm getting lab work done tomorrow and my surgeon recommends we don't take any supplements for three days before. This means stopping my B2 supplements and my magnesium ones too. That turned out to be a majorly bad idea. It didn't take 24 hours before my head was hurting much worse than usual and for longer and more often.

I decided lab work be damned and I started taking the B2s again. However, I didn't start up the magnesium right away and I didn't take any today as I am getting my magnesium levels checked so I did want to at least sort of follow my instructions.

I can't wait to get back on these things and to see the neurologist again. I'm also wondering, if it's clear the B12 is doing something, if I should take more or possibly something stronger. I'm going to push more for something stronger now that I know drugs can help. (Okay, I say that, but we'll see what happens.)

I'm also getting a DEXA scan tomorrow and they also recommend no calcium the day of the test. I wonder why.

Sunday, January 6, 2013

Ohmigod, do I really look like that?

I just saw a picture of myself from the Holiday Party and I can't believe how heavy I look. My hair looked horrible too but I'm kind of used to that. I'm way overdue for a haircut though so I really need to get on it.

It's kind of lowering to think that I've been fooling myself about my weight but I looked way bigger in those pictures that I think I am and I've been down that path before.

I keep telling myself that all I have to do is start working out again the fat will fall off replaced by lovely muscle. This is even probably true. But what if I can't workout for another year? Do I really want to put on another 10 pounds of fat and lose even more muscle?

I also believe that my head injury makes me hungry. This is also probably true but again what if it's like that for another year?

So I'm going to start tracking my food again. That's it. No Weight Watchers, no Jenny Craig, as tempting as it is to join those programs. I know I can lose 10 pounds of fat on them in a month or two. But I need to learn how to eat and manage my weight forever and I worry that going on a real diet will get me back in the yo-yo dieting thing.

Therefore, it's food tracking for me. I'm going to do it just like I did last time, five years ago in Jan. of 2008. I'm going to track it at first and then I'll look for things to improve and start working on improving them one by one.

You heard it here first!

Thursday, January 3, 2013

Ninja Disappointment

I bought myself a Ninja blender for Christmas. I had heard a lot about them and they have a cool name, but some of what I heard made me pause. In particular, I was worried about the fact that it supposedly "pulverized" the ice down to liquid. I like my protein shakes to have the consistency of a smoothie and not to be completely liquid. But I've gone through two regular blenders, one immersion blender and two Magic Bullets in the past four years and I needed yet another blender.

I figured an expensive "professional" blender was worth trying. If it lasted four years, I'd be making money as the blenders I've bought in the past four years cost way more than even the top-of-the-line Ninja.